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[personal profile] brigid
I've been taking zinc supplements for almost a year now, thought I'd post the results.

When I take them regularly I see a gradual easing of symptoms. It's not a cure, at all, but things are better.

If I stop taking them for more than a few days my skin basically explodes and I remember why I started taking them in the first place.

So, for me, oral zinc supplements work... at least for now.

I started using Head And Shoulders shampoo (which has zinc in it) as a body wash, along with a scrub brush, on my problem areas, and I use a zinc ointment (it's a diaper ointment, ugh) on really bad/painful outbreaks. Both help, too.
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[personal profile] brigid
The Courage Of Miss June

The idea of stripping in front of a crowd would be nerve-racking for anyone. But for Alexa [Hardy], who starred in the St Neots Players production last week, it took even more courage: for more than half her life, she has suffered from a rare and extremely painful skin disorder – which has left her scarred by a dozen operations.

Called Hidradenitis Suppurativa, Alexa describes the condition as ‘like a very extreme form of acne’. It causes infected lumps, akin to abscesses, to develop on the body. Some are quite small and gradually shrink and fade away. Others grow uncontrollably – until surgical intervention is the only option.

“I had one 10 years ago that nearly killed me,” says Alexa. “It just kept getting bigger and deeper; in the end it was about 6cm in diameter. I had one lot of antibiotics, then another, and finally had to be rushed into hospital for an emergency operation: it was so infected, I was on the verge of septicaemia.

Check out the link for more about Ms Hardy, her career,and how she's treated her hidradenitis suppurativa. This is such a hidden disease, it's nice to see people speaking out about having it.


Jul. 11th, 2012 05:41 pm
brigid: (Default)
[personal profile] brigid
Hi, I'm Brigid. I'm 33 and first developed Hidradenitis suppurativa when I was in grade school (around the time I began puberty) so I've had it at least 20 years now. I'm lucky that it hasn't progressed too badly in that time, but I still feel gross and hate my skin and there have been times where I've called off work or cancelled social engagements because of the pain.

My current treatment plan includes wearing all-natural fabrics, as loose fitting as possible, and bathing with a scrub brush and anti-bacterial soap followed up with hibiclens. I recently started taking zinc (preliminary studies from 2007 showed beneficial results, no follow up studies have been published that I've found) and turmeric (there is NO clinical data on this, but what the hell).


Hidradenitis Suppurativa Information And Support

June 2013

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